Hospital visit!

Shay has been in hospital this week, which I will update you all later on. It has been a huge reminder of the daily struggles our son goes through. He is four years old, but has the aches, pains and fatigue of someone much much older. You look at him and feel totally powerless. His eyes tell a completely different story when he looks at you. The sadness I see from him at times is overwhelming it's hard seeing him like this. Tears are spilt countless times when he says 'I love you Mummy' 'I love you Daddy' . If he goes anywhere we don't like saying goodbye it's always see you soon. Both Alan and I have become very deep thinkers locking up that raw emotion just to get through everyday life and the struggles that brings with it. When people ask how he is it's always he's doing good, he's fine it's the only way to protect our emotions and to stop everything from boiling over. He isn't doing great, people see him playing and having fun! We see him falling over, dropping with exhaustion, not eating as he says 'me so tired, it's hard' or 'my bones are hurting', struggling with his mobility on a daily basis. BUT, take all that away and we have been blessed with the most amazing son, who has bought so much joy and laughter into our life's. He is an inspiration to us and to you, he is a fantastic brother who is so caring towards others. My little boy is fighting life daily and we are so proud he picked us as his parents.