Following on from my last entry - Shay was hospitalised for 5 days due to an excruciating pain high up on his right side. He had no coughs, colds or infections that we could see at this time. He has been complaining of being in pain for about 2 weeks prior to him going to hospital. Shay suffers from alot of stomach aches especially when he eats so naturally we put it down to this. It's very hard for such a young child to locate exactly where the pain is. That Monday evening while Shay was asleep, he woke up crying and just by listening to his cry you could tell that something wasn't right. So bags packed in a hurry and a quick dash to our local hospital. On arriving Shay's port was accessed, blood cultures taken and IV antibiotics started. When this happens we know he is going to be in for at least 5 days. His blood cultures came back negative meaning that any infection hasn't gone into his blood stream. Shay's CRP came back that he had an acute infection and inflammation somewhere in his body. Shay's tonsils where very large BUT causing him no ill side affects. That very night Shay had an xray which showed nothing unusual. As it was so late they decided to scan Shay the next morning. Morning, afternoon and early evening arrived and still Shay is waiting to be scanned. Shay is still being given IV antibiotics with no sign of the long awaited scan. Funnily enough his pain has completely disappeared. We mention to the doctors about a pancreas test, on Wednesday morning bloods are taken to test his pancreas function. (which came back clear). Late afternoon Shay at lasts goes for the long awaited scan which unremarkable shows nothing wrong. You can see a complete difference in the pictures...Shay is standing up for his xray the first night in hospital. He was looking very pale and tired. By the time he had his scan he had rosy cheeks and full of smiles.
Shay was administrated antibiotics on admission to hospital by IV. This is the quickest way to deal with infections and on previous admissions has worked very quickly with Shay. To me it seems obvious that any infection he had was cleared up very quickly by the antibiotics. I feel the scan, and pancreas function test was taken far to late for it to show anything. I believe Shay might of had an attack of 'Pancreatitis', talking to other parents with children with Pearson's this seems the most probable explanation for his pain. On leaving hospital he still had enlarged tonsils but this is believed to be only a secondary infection (without symptoms) and not the primary cause. So we have left the hospital with no knowledge or understanding of what was wrong with him. All we know is something has happened.....along with the pain, his speech became slurred and his eyelids droopy. It has taken well over a week for his speech to recover to how it was before and still he is not as clear as he was before.
Shay has a very special day coming up, which I will update everyone in a couple of weeks. He is going to be soooo excited and such alot of people have put so much of their time and energy into this for our little man. All we will say at this time is uniforms, dogs, cars, chases and a skidpan! Mix all that with Shay and he is going to have a day to remember.
